Cochlear Implant surgery - check!

Well the time has finally come and gone. Kendall had her cochlear implant surgery on February 12th . (She's kept us so busy since, I'm just getting around to blogging about it!)
Thankfully we had no issues with insurance and the surgery was approved very quickly. Although for a while we were not sure if it was going to happen, even right up to the day before. Kendall had been fighting a virus that left her so congested and snotty for over 4 weeks. We fully expected her surgeon to say no to the surgery once he heard her nasty cough. We were shocked when he said that he was comfortable with continuing with the surgery. He said she's been fever free, her lungs and ears were clear,  and that the virus was most likely on the very tail end. We were just dealing with drainage that could take weeks or more to dry up. It was now or risk her really catching something down he road.

 On a side note, I don't think that I mentioned this before but originally we were were offered the option of getting Kendall implanted at 6 months old. The catch was that due to her age and size she would only be implanted on one side. She would then have to come back in a couple of months to do the other side. I wasn't comfortable with having her go under anesthesia twice so we opted to wait and have it done bilaterally at 8 months.


We were up bight and early. We had to be at the hospital by 5am to prep for her surgery that was scheduled for 7 am.

 I was worried she would have fit not being able to eat prior to surgery, but thankfully she wasn't cranky. All the medical equipment and my iPhone kept her distracted.


The surgery took a little over four hours. We were updated on Kendall's status frequently by the OR nurse with this pager. The time actually seemed to fly by and before we knew it our surgeon was out showing us pictures and telling us it was a success.


Seeing her for the first time in the recovery room after surgery. It was a total flashback seeing Kendall all bandaged up like her brother. They even had the same hospital gowns. I can't tell you how may times we said to each other  "Can you believe we are doing this again?"


Once we got back to her hospital room Kendall was able to take a good three hour nap. We had the hospital staff bring us an adult hospital bed and we took turns holding her in our arms. Just like her brother, she wanted nothing to do with sleeping in a crib after surgery. They both preferred to be in an upright or inclined position. The small dose of morphine also helped get us through a rough spot after she woke up from her nap.
  Speaking of morphine, Kendall had a morphine dose ordered for every hour if she need it after surgery. She had one dose while she was in recovery and didn't need another until about five hours after that. We were grateful that Kendall didn't require pain medication that often because our nurse was pain in the butt about giving it to her. She kept telling us that a just a dose of Tylenol should take care of the pain as Kendall screamed in my arms. She also said that we should only give her Tylenol because she won't have morphine tomorrow when she went home. Really? I thought, she's in acute pain, she just had surgery on both sides of her head, and it's been five hours since she had anything! The doctor prescribed it for after surgery for a reason, otherwise I would have just taken her home and given her Tylenol myself. Grrrr.  It was all I could do to not go all momma bear on her and pull the I'm a freaking pediatric ICU nurse card on her. Thankfully my husband was there to calmly but sternly state "my wife would like her to have morphine and I need you to get it." She got the hint. ;)

Can you believe this was our hospital room? or shall I say rooms? I guess the census was low because they gave us a VIP room. It had a another room attached that had a pull out bed, refrigerator, microwave, and TV for the guest staying with the patient. Kemper and his cousin had a blast turning it into their own pad while visiting.


We had a pretty smooth night. Kendall was up about every 3-4 hours to feed and get an occasional scheduled pain med, but otherwise she was totally fine. I snuggled up with her in bed until around five am.  I could no longer stand the crick in my neck from not being able to move in fear of waking her. Daddy took over and I got to try out the "guest" room. The next morning Kendall woke up happy as a clam. It's amazing how resilient kids can be. She just wanted to play and play.


To minimize swelling Kendall had small drains placed behind her ears during surgery to drain the extra fluid. They were easily removed the next morning by her surgeon. She still had some drainage afterwards that required us to change out her dressings every once in a while. You would think I being the nurse I would change them out but nope Daddy insisted on doing it.


 
  Kendall had her surgery on a Wednesday morning and we were home by Friday afternoon. It just all went by so fast and we couldn't have asked for it to have gone any better. (well maybe the morphine part.)   K even enjoyed his time away from us. He had a blast getting spoiled by my parents.

Valentines Day was two days after surgery and none of her cute Valentines outfits would fit over her head, so we improvised!!




We took Kendall's ear muffs, Princess Leia buns, water polo headgear, ear protectors off Sunday night. They had told us to take them off Monday morning but she had such a hard time sleeping with them we decided to take them off a night early. (we did this with K too) Sure enough she slept through the night once we did.

Her swelling was much less than her brothers, most of it was on the top portion of her head where the implants were and around the temples. Kinda made her head look like an upside down triangle.



Her ears are really swollen here, but I thought her incisions looked great. Kemper's incisions looked very similar and nowadays you have to really look hard in order to see them.

           
My sweet bionic babies!!

K back in 2010 at 9 months                                     Kendall 2014 at 8 months


Up Next:
ACTIVATION!!!!
  

Hearing birthday #4



February 11th we celebrated Kemper's 4th hearing birthday!
We like to take this day every year to thank our family, friends, doctors, therapists, teachers, and all those that have been with us throughout this journey. It really does take a village. When K was first activated I would watch tons of YouTube videos of other children with cochlear implants and I was amazed to see them listening and speaking so well. It was so hard to imagine that K would be doing the same one day. I'm so proud of how far he has come.



 K's hearing birthday celebration started off at school where his awesome teacher made him a happy hearing birthday hat to wear at school. He just loved it and even wore it the rest of the day.





 At home I can't get this boy to be quiet. He's a talker. He has no problem telling us what he likes and doesn't like, but put a camera in from of him and ask him a few little questions and he turns into a silly ham that can't remember anything. Here's my attempt at an interview with him.



Later that night we did our annual family celebration over at my parents house. Kemper had the privilege once again of deciding on the menu:  pizza and cupcakes. Surprised?
 My older sister can never resist getting K a present. This year she bought him the soundtrack to the movie Frozen. If you don't know the movie Frozen A. You must not have small children. B. You live under a rock.
 We Kemper has now memorized every song on this album.




Pretty much everyday after school K goes to his playroom upstairs and plays his CD's. We bought him a karaoke machine for Christmas so he loves to sing with the microphone. Its amazing how much he loves music. He's always asking for some type of instrument or CD. How ironic is that?!!
Like I said before Kemper is not a huge fan of being filmed so he would never agree to me video taping him singing. I had to get a little sneaky and hide the camera behind his toys to get this shot of him singing "Let it Go" from the movie Frozen. Keep watching and you can see him really get into it.



Thank you Cochlear Implants for our happy boy!!

Sedated ABR/ MRI



When Kendall was 6 months old she had her last hearing tests to verify her degree of hearing loss. During these tests they looked at her brain activity to see any reaction to varying noise frequencies. To make sure they would get accurate results and not get any interference from her moving they sedated her. The entire process took about two hours total and she tolerated the sedation well. The results were as expected- profound bilateral hearing loss.



The last step in our cochlear implant candidacy process was to get an MRI. They needed to make sure that her cochleas and auditory nerves were fully developed. We were not too nervous about getting these results since we already knew that a flawed Connexin 26 gene was the cause of her hearing loss, but we still had to rule out any other causes.


She was such a champ and had no issues at all. The only problem we had was trying to keep all the medical equipment out of her mouth!!
 When Kemper had his MRI  they gave him IV sedation. This time with Kendall they just used gas to put her under and it was so much better. She had an easier time coming out of sedation and was back to normal in a very short time. It seemed like it took forever for K just to wake up post MRI.




Thankfully the MRI results were as expected too-  her auditory canal structure is intact as well as her auditory nerve so she is a perfect candidate for cochlear implants!

Thanksgiving Christmas




I know I'm about 3-4 months late but oh well this is my memory book and I can't go without documenting, especially since it was Kendall's first Thanksgiving and Christmas.

Thanksgiving 2013

We did our annual trip down to San Angelo to see my husbands side of the family.We love getting away from the craziness of Dallas to enjoy a little quiet family time in this small town. We don't do much while we are there and that's what we love about it.

 It's been a tradition to eat Thanksgiving dinner over at my husbands grandmother's house.  She's 100 years old (ssshhh I didn't tell you that) and still makes dinner for the entire family!! Kemper was such a ham making us laugh through out dinner. I'm thinking part of it may have been  because I treated him to a little of my soda from a wine glass ;). I think he really enjoyed the perks of sitting at the adult table. Do you see little Kendall in the background sucking on a chicken bone? When her brother was around the same age his great grandmother gave one to him on Thanksgiving and he was in heaven sucking away. She went out of her way to make one for Kendall this year, and just like her brother it kept her quiet long enough for all of us to enjoy our dinner.



Spending time with the family playing pass the baby.

The kids with their grandparents. I still can't believe that 100 years separate Kendall and her Great Grandmother. It's a blessing that we get to spend another Thanksgiving with her.


On one of our few outings we took Kemper to bowl for his first time. He had a great time. He would knock down those pins and then come back strutting to his seat like he owned the place.

Like I said we didn't do much over thanksgiving besides eat lots of  great food and hang out with the family enjoying a simple life. Why would you want to do anything else??



Christmas 2013

We did our traditional  Christmas celebration back home in Dallas.

We did a better job at taking the kids to see Santa this year than we did last year.  There was no wait to see Santa ( three hour wait last year) and I didn't lose the pictures afterward!! Yay!!


Both of them smiling and looking at the camera!!  It's a hard thing to do especially when one of them can't hear and you have to jump up and down like a fool to get her attention!



Some of our Christmas decorations. Yes, we have two trees. Our big show off tree and our smaller sentimental tree. We had a full mantle with two extra stockings this year. One for our sweet new addition to the family, Kendy, and the other for my father-in-law, Jim, that came to stay with us this Christmas.

 The tradition of making homemade cookies for Santa  has evolved into baking store bought cookies. Please don't judge ;) Although we did go over to a friends house and bake and decorate real gingerbread houses. It was so much fun I hope to start making that a tradition.


I can't say that The Elf on the Shelf is my favorite tradition but K is obsessed with it. He would wake up sooo early just to see what his elf Lucky did. UGH!  He also begged us to ask Santa to send a girl elf for Kendall. So Snowflake the girl elf is now part of our family.



I'll admit having a little girl is so fun when it comes to dressing for the holidays. She was so stylish in her festive gear.

Halloween 2013



oh yes we did.




I've always loved Halloween.
It means meeting up with friends and family, getting dressed up as your favorite characters, and getting lots of candy! Apparently I've passed this onto my son. He couldn't wait for Halloween this year. He had his costume for this year picked out November 1st of last year! He also had ours picked out as well. ;) Last year he was Jake, from Jake and the Neverland Pirates. He is still obsessed with the Story of Peter Pan, Captain Hook, and anything having to do with Pirates.  I remember one of the first things he said after finding out that he was going to have a baby sister was " She can be Tinkerbell for Halloween!"


 The weather was perfect, cool but not cold enough to have to wear a jacket and ruin your costume.We did the annual stroll in my parents neighborhood where I grew up.  My sister and her family joined us once again. My nephew Nolan was so excited to be the Red Power Ranger.


Halloween 2013- Halloween 2009

I love looking back and comparing. Funny, I bet these people don't know we take a picture with their decorations each year ;)

Kendall's first Halloween.
Sweetest little Tinkerbell ever.

Like I said I love to compare.
 Kemper top row on his first Halloween and bottom row Kendy.

Just a few of Kendall's Halloween outfits. She's so festive already ;)




 Just to show you some things never change!!

Pumpkin Patch 2013


Still attempting to catch up and finish up all my draft posts. Here we go, all the way back to October!!



My priceless pumpkins


Kemper- 2009

This years trip to the Pumpkin Patch was bitter sweet.  We got to take Kendall to her first yet last  visit to the Owens Pumpkin patch. Sadly the farm that I have visited every year since I was a child has been sold.  This was their last year to be open. No more annual pictures of me trying to sell my kids in front of their "For Sale" sign.

but that didn't stop me from getting millions of pictures of this little pumpkin and her brother.

 We're gonna miss running through the maze, seeing all the animals, going on a hay ride, picking out that perfect pumpkin...

seeing their sweet faces in this sign...


eating hot dogs with daddy...


                             October 2009                                                                           October 2013


We've had a great time over the years Owen's Pumpkin Patch, but I guess it's time to find move on and make some new traditions.

Hearing aids round two



 Well the time has come for Kendall to get her set of expensive chew toys  a.k.a hearing aids. I'll admit I wasn't as excited to get Kendall's aids as I was for her brother to get his.  Knowing that Kemper didn't get any benefit from them I was highly doubtful Kendall would either since she has the same degree of hearing loss. The only reasons we did get them were for that slight chance she could get some stimulation to that auditory nerve and the fact that we had to as part of the cochlear implant candidacy criteria. 


My sweet girl at three months old getting her first pair of ear molds made for her hearing aids.  Thankfully we were able to rent these hearing aids for about $500 as opposed to buying a pair.



Two weeks later Kendall sporting her Phonak Naida S III  hearing aids.



Like the pink sparkles? They were requested by her brother. He insisted that she get pink hearing aids. We couldn't get the actual aids in a color but luckily for us we were able to pick out the color of her molds.


It didn't take long for the squealing feedback noise to drive me nuts. Just the way I remembered. I think it's almost impossible to keep them on a child this young, especially when they are not sitting up yet. For the most part she has left them alone but they just squeal and fall out almost each time she turns her head. I tried putting a cap on her but she hated it and it just made the situation worse. Unfortunately she is not showing any difference in her hearing except for a few times we saw her turn her head to look at the dog when he barked, but we are not 100% sure she just didn't see him move with her peripheral vision.  We plan on getting her cochlear implants a little sooner than we did with Kemper so that should shorten our time using these pesky things!


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