tag:blogger.com,1999:blog-4787246892905439456.post5181542049644711179..comments2023-09-01T03:18:25.568-07:00Comments on Lone Star Family: Our Journey beginsLone Star Familyhttp://www.blogger.com/profile/00060405989789510289noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-4787246892905439456.post-92205210571370570192009-06-18T18:52:54.391-07:002009-06-18T18:52:54.391-07:00The hearing aides my not give him alot of sound bu...The hearing aides my not give him alot of sound but enough to keep his nerves stimulated. I really feel that whatever sound they can get till you can get him implanted (if that is how you decide to go)helps. I have two boys who are deaf if you have any questions feel free to ask. I wish that when my first was born there were sites and blogs..A connection I could have used...Lisahttps://www.blogger.com/profile/08096710412832385181noreply@blogger.comtag:blogger.com,1999:blog-4787246892905439456.post-7831061816384514732009-06-09T22:34:14.888-07:002009-06-09T22:34:14.888-07:00I'm not sure exactly where in Texas you are, b...I'm not sure exactly where in Texas you are, but you need to check out sunshinecottage.org it's in San Antonio. It is an amazing school. They can do hearing tests, fit for hearing aids, etc. and you can get in immediately. We are in the parent infant program and it has been the biggest blessing for us. <br /><br />They have people from all over, including other countries who have moved to bring their hearing imparied children there. It is such a support system. You can call them and they can answer any of your questions even if you don't attend and it doesn't cost anything!!! <br /><br />Way to be proactive! My daughter has CIs (activated 8 months ago) and today she heard me WHISPER her name!!! It is a roller coaster of emotions, but an incredible journey. Good luck!Anonymoushttps://www.blogger.com/profile/12791422373977847267noreply@blogger.comtag:blogger.com,1999:blog-4787246892905439456.post-70278679635925268332009-06-08T07:57:13.425-07:002009-06-08T07:57:13.425-07:00I felt the same exact way after our first visit wi...I felt the same exact way after our first visit with the ENT. It seemed like the one month of wait time between the audi telling us Aiden was deaf to the actual ENT appt was FOREVER. I couldn't wait for that appt. because I just knew the ENT was going to tell us Aiden wasn't permanently deaf, that he just had all this fluid and it could be "fixed". I was a very disappointed mommy walking out of that office ... same as you ... he told us everything we already knew, looked in his ears, and sent us on our way. All we could do from that point though was move forward, and it sounds like you're ready to move forward too. Once Aiden got his HAs it seemed to get somewhat easier ... it made it real and we knew it was such an important step in our baby hearing one day. Good luck with the HA fitting! <br /><br />PS - We had Aiden's MRI at Children's and they were just wonderful there ... plan on spending the whole day there though! It took us about 3 mths to get scheduled.tammyhttps://www.blogger.com/profile/11440760114820803415noreply@blogger.comtag:blogger.com,1999:blog-4787246892905439456.post-31673501393133917252009-06-06T17:31:18.661-07:002009-06-06T17:31:18.661-07:00Way to be pro-active, that is the best way to be. ...Way to be pro-active, that is the best way to be. You are the one that has to fight for your child, if you don't do it, no one will.<br />Hopefully, you will be able to get the hearing aids soon. Just remember that even if it seems like he is getting no real gain from the hearing aids, they are training his brain to accept the CI's(if he goes that route).<br />I look forward to reading about your journey.Bill and Shellyhttps://www.blogger.com/profile/13582099516671121623noreply@blogger.comtag:blogger.com,1999:blog-4787246892905439456.post-87282173629784391592009-06-06T12:23:14.980-07:002009-06-06T12:23:14.980-07:00Trips to the ENT are usually pretty unproductive, ...Trips to the ENT are usually pretty unproductive, in my opinion! How frustrating!<br /><br />Don't give up on the hearing aid trial yet! Some kids end up getting some benefit from them (even if not enough, but enough to give them access to loud sounds and low frequencies, and at least good sound awareness! Lucas was not a good HA user, but we sure tried! There are 2 blogs that come to mind when I think of good HA users who now have CIs... in fact they're bimodal users (1 CI & 1 HA) who are really successful! (Christian @ live*laugh*love*family and Ben @ b-orange).<br /><br />Good luck to you!PolyglotMomhttps://www.blogger.com/profile/10359518388037465144noreply@blogger.comtag:blogger.com,1999:blog-4787246892905439456.post-61381920374364141502009-06-05T22:06:09.980-07:002009-06-05T22:06:09.980-07:00Wow! You have a really nice blog!! I think it is s...Wow! You have a really nice blog!! I think it is so cool that there are so many bloggers out there! Youhave such a cute little guy there! I suppose you hear that a lto! Nice blog! keep it up!<br /><br />~HannahHannahhttps://www.blogger.com/profile/12643231540482871600noreply@blogger.com